Its hard to believe we have been here 10 days. Apart from the first couple days of ATG, Ryan has so far coped so much better than we anticipated. He has now finished the 4 days of Fludarabin and tomorrow starts 2 days of Thiotepa, the second high dose chemo drug.
He is eating well and genuinely seems very happy. Today he skyped our local hospital and loved seeing all his lovely doctors and nurses. He said afterwards that he missed them all.
Want he really needs at the moment is a good nights sleep but it might be a while before that happens for any of us !
P.S. My injections have started and after waiting over an hour for a nurse to be free to inject me I decided to do it myself. Im sure that not many people enjoy injections and I will count myself among the majority who dont but all I had to do is think of all the wonderful brave children I have met over the past few years to realise that the little part that I play in all of this pales in significance compared to what they have been through and are still going through. A shining example being my wonderful son.
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