Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Saturday, 7 April 2012

We're home


After the vascular cathetar was removed we spent the night in hospital (you are supposed to wait 2 hours in case the site of the cathetar starts to bleed again) but we preferred to let Ryan sleep instead of waking him and taking him up to Sam’s House late evening.  The following day at 8.30am Ryan had his final session of radiotherapy; he gave the radiotherapy a Thank You card which he had filled with kisses and he was very proud of it.  The nurses were really lovely and gave him a Lego aeroplane and some other little gifts and told him what a good boy he had been.  Then we came home.  The current plan is for a bone marrow harvest in Bristol next Friday, so we will return Thursday evening, and then to start chemotherapy the following week.  We are going to make the most of every day at home and try and catch up with friends and family whilst everyone has time off school.  We even managed to go to a stunt show yesterday afternoon, which Ryan thoroughly enjoyed.

A few weeks ago Ryan’s Auntie Caz (Gareth’s sister) ran as part of the Olympic Park Run and managed to raise £286.00 for Ryan’s appeal at the same time.  Her account of the event and a big Thank You to everyone that donated to the appeal can be found at the bottom of the events page.


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