Our trip to Tübingen went according to plan with no surprises; we didn't wait for the results of t-cell analysis or virology before heading back for home but the night before we left we were lucky enough to have timed it right so that it was the 'Thursday Parents Meal' but this time the meal was prepared by a turkish family, whose daughter had recently had a haplo identical stem cell transplant. They prepared a feast of wonderful food and invited the doctors and nurses from the transplant unit. Ryan stayed up late so that he could try some of the food and was pleased to see his favourite male nurse Luca again. The following day we managed to squeeze the rest of our belongings, including 2 toboggans, into the car and headed home.
Last week Ryan had a full body MRI, as it had been over 3 months since the last one. Again he was amazing and lied still, covered in strapping and a head brace, for almost an hour. We are awaiting the results.
He was very upset in the days after his friend Adam died. We have spent lots of time talking about things with him and answering his questions; we are very lucky that he is so good at communicating his feelings and expressing himself. Gareth and I usually have to wear a mask to hide our own feelings and so it has helped us greatly too being able to talk about things.