Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Monday, 24 December 2012

Merry Christmas

Its been lovely being home, bit manic due to time of year but we knew it would be like that. Its weird too as everything feels like its in the wrong place after being away so long.

We travel back to Germany on the 1st January and hope to stop off and see Adam and family providing he feels well enough. Adam arrived home  from America on Thursday as his latest scans were stable. It will be lovely if the boys can meet up. Jamie is making progress but is still fighting pneumonia and will he spending Christmas in ICU. We really hope he feels well enough to open his presents. 

We would like to wish everyone that follows Ryan's journal a very Happy Christmas and thank everyone who has helped with our fundraising.  We truly dont know what we would do without your support. Thank you for caring about Ryan and taking him into your hearts. 


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