Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Wednesday, 16 January 2013

It is with great sadness that I have to tell you that our little friend Jamie's struggle ended, peacefully, yesterday. He was a funny, energetic little boy with a wicked sense of humour (and obsession with spiders!) and i'm sure that he will not be forgotten by anyone who had the privilege of meeting him. We have nothing but admiration for John and Vicky his parents....


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