Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Monday, 4 March 2013

Justgiving

Thank you to everyone organising events to raise funds for Ryan's treatment. If you have created a justgiving page and want the proceeds to go to Ryan's Appeal please make sure that you are listed on the Team Page: Here is the link to check:

http://www.justgiving.com/teams/ryanedwards

This page shows our running total and all the individual pages that have been created.

If your page is not showing then you need to click on the 'Join the Team' hyperlink at the top of the list of teams or follow the link below (you should be able to select Ryan's Appeal as your designated appeal) and then check again:

https://www.justgiving.com/login?returnUrl=%252fteams%252fryanedwards%252fjoin%252f

If you need any help please get in touch here or by e-mail to ryansappealpage@hotmail.co.uk

Thanks so much to everyone helping us raise the money needed for Ryan's treatment, we really do appreciate it more than you will ever know x

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