Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Saturday, 7 December 2013

Ryan's Christmas surprise

Ryan was very excited to find a letter from Father Christmas waiting for him under the Christmas Tree inviting him to visit him in his snowy woodland home in Lapland UK (http://www.laplanduk.co.uk). He is very excited, and a bit nervous!, as has never had the opportunity to go to see Father Christmas before and has spent most of his Christmas's in hospital. Big thank you to the local charity Dream-A-Way for treating Ryan to this magical experience and to my lovely friend Shelley for putting Ryan forward for this Christmas time treat. Another tear jerking experience for me but it will be happy tears!



Next week Ryan finds out another big surprise! 

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