Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Sunday, 24 December 2017

They say 'A picture is worth a thousand words'...

Zorb football for Ryan's 10th Birthday in Sept 2016


This year I thought I would show you what Ryan has been up to since my last update and hope that you can see for yourself how truly lucky we feel...
Taking part in the firewalk in memory of Harvey Hext, to raise money for
The Harvey Hext Trust- A siblings wish
Halloween and Christmas Day 2016   

Ski holiday in February 2016
 After the operation to create a new tear duct - March 2017


   Taking after Dad on his motorbike



  School disco summer term 2017



Family holiday with cousins Summer 2017



   Trampoline park with Spencer Hext Summer 2017

  
Jet-ski fun with friends Summer 2017



Halloween 2017!

Helping decorate the tree...

Ryan is now 11 and in Year 6, he continues to do well at school and it's hard to believe that next September he will be joining secondary school.  The months are flying by.  He is well and he has fewer and fewer hospital visits.  His growth has been effected by the vast amount of treatment he has had and so he had recently started on a the growth hormone, which should help him achieve a normal growth pattern.  Unfortunately this comes in the form of an injection each evening, just before bedtime, but he is coping well and we hope that this will soon become part of a new daily routine.

We would like to wish everyone who follows Ryan's story a very Happy Christmas and a happy and healthy 2018 xx






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1 comment:

  1. Barbara24 December 2017 at 21:35

    Hi, a nearly grown up! So good to see Ryan in that good condition. And like his dad always activ and sporty. Have you all a merry xmas and a very happy new year. Love, Barbara

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