Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Wednesday, 3 July 2013

Back in Tübingen

Our journey back to Tübingen didnt start well; we hadnt realised it coincided with the end of Glastonbury festival and so the traffic was at stand still several times on the trip to Dover. Then there was another jam due to an overturned lorry.... Needless to say we missed our train on the Eurotunnel and had another hour wait before boarding finally arrived at the parents house at 1.30am instead of between 9-10pm.

Whilst stuck in traffic we received a call from the Klinik asking if we could come for review on wednesday instead of tuesday as they were so busy. And so our first day was a free day and as the sun was shining, and we hadnt previously had much opportunity to enjoy the lovely city of Tübingen, we hired a paddle boat and spent an hour on the river Neckar in the beautiful sunshine.

Today we have klinik at midday and hope to get the results of Ryan's t-cells before returning home later this week. 


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