Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Friday, 12 July 2013


We are very sad to tell you that yesterday Ryan's best friend Adam Bird passed away peacefully at home with his parents Nick and Alison holding his hands. 

We respect them both so much for always being able to make the right decisions for Adam and cannot begin to imagine how much the whole family will miss him. Our thoughts and prayers are with Nick and Alison and his big brother and sister Jake and Jessica x x x x 

Nick's blog

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