Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Thursday, 1 November 2012

Clinic had mixed news yesterday, his platelets are still dropping which is a sign of rejection but his other counts have responded to GCSF.... So no further forward. Had a meeting about radiotherapy which is not as clear cut as they had thought and involves a lot of discussion due to the levels of radiotherapy he has already had. We will find out more on both topics on friday.

Meanwhile Ryan is fine and really enjoyed a halloween treasure hunt in the garden last night with Jamie.

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