Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Tuesday, 6 November 2012

I feel half afraid to write this update, i dont want to jinx anything. So I will keep it brief.

On Monday we had clinic for blood tests. Ryan's HB was stable, his platelets had dropped but only by 10 to 22, but his white blood cell count was the best it had been in about 2 weeks at 2.3!

These results could indicate the T-cells given 2 weeks ago have started to attack Ryan's own T-cells. They could have been a false reading....

We went back to clinic today to check whether his platelets had dropped further and all his blood counts were almost identical to yesterday.

All very encouraging but too early to say what is happening... 'We must wait' as the Dr said today. Enough said.

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