Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Thursday, 3 May 2012

Just a couple things to tell you about fund raising events :

Dan's full body wax is now on YouTube!  If you want to share his pain click here.  It brought tears to my eyes and not just because of the pain but because Dan did this for Ryan :-)

You can find this link again and a write up by Vicky, Dan's wife, on the events page.  Dan is so close to hitting his target of £2,500 and is sure to do so after the event is seen in today's Echo - to view the article on-line click here.

Wear Red for Ryan day has so far raised over £1,100 but money is still coming in.  Money has also been added to Ryan's main justgiving page and I have been sent some great photo's which I will be adding to the bottom on the Events page.

There are updates on several of the events that have taken place on the Events page.  I have also added a link to Gareth's YouTube channel on the right on the screen.

Finally Good Luck to Gary, Andrew and Alan Hayes and Claire Channing who are all running the 5K Great West Run for Ryan on Sunday 6th May.

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