Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Thursday, 10 May 2012

This weekend's events

Just a quick update about our fundraising:  Firstly Thank You to everyone that has donated to Ryan's appeal - as of today the appeal stands at £41,500!!  We are blown away by the increase in the last few weeks and really appreciate every single penny.

The sun shone for our Great West Runners; Claire Channing who ran the half marathon and for Gary, Andrew and Alan Hayes who ran the 5K. Between them they raised a total of £677.93.  There is a photo of the Hayes family runners in action on the events page.  There is also an update from Kate and Alice Butler who, with a team of 16 friends and family, raised a massive £1,047 by completing their 9 mile sponsored walk.

Tomorrow night there is a karaoke and sponsored waxing at the Royal Oak at Nadderwater and this weekend there is Zumba for Ryan.  All abilities are welcome, don't worry if you haven't done Zumba before - now is your chance to give it a try.  Registration for the event is from 1.30 at Walter Daw School, Woodwater Road.

Also on Saturday is the Pig Racing at the Jubilee Club at Pinhoe - the first race starts at 8pm.  Full details of all these events can be found on the events page.  There are lots of new events listed and lots more sponsored events on the justgiving team page - Thank you to everyone who is organising a sponsored event for Ryan, we really do appreciate it.

Good Luck to Charlotte and Buster who are doing their sky dive for Ryan this weekend. They have smashed their target of £1,000 and have so far raised a total of £1,454 between the two of them.

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