Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Tuesday, 8 May 2012

Ryan temperature didn't come to anything luckily, his infection markers in his blood were very slightly raised which did not indicate an infection so most likely to have been a virus. His cough is getting better and apart from being a bit tired he seems ok.

In his usual style Ryan didn't admit to being tired and still wanted to go out on his motorbike, so yesterday afternoon he met up with Jack in a wet muddy field. Both boys found the conditions harder than last time but still had fun.

His blood counts didn't fall much more and today his neutrophils were 1.5 and so he has started his second cycle of chemotherapy. Fingers crossed he tolerates it as well as last time.

1 comment:

  1. good luck ryan new to you but hope i can meet you one day i work at the RD&E