Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Sunday, 20 May 2012

No news is no news......

Just a quick update to let you know we have no news about the scans yet. We were told that the MRI wasn't being reviewed until tomorrow at the earliest and the MRI and MIBG scans both have to be reviewed together by a team of doctors and surgeons in Bristol.

But we have done a good job of keeping busy! Ryan is well, yesterday he went on his motorbike again and came off a couple times as he is getting a bit too confident! He is unscathed though thank goodness. Today he cycled for several miles to Exeter quayside where he watched some mountain bike stunts and free-runners - right up his street! He also saw a glimpse of the Olympic flame runner but was very unimpressed!

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