Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Saturday, 8 September 2012

Day -10

Ryan had a rough night last night with high fevers, high pulse and low blood pressure, he was very closely monitored and stabilised by 3am. He has been ok this morning, fine in fact but his treatment today has been delayed as he needs platelets for the second day running (this is because Ryan already had a low count and the threshold whilst on ATG is 50). Today he also needs a blood transfusion and as washed products take longer to prepare his treatment had to be delayed until 5pm. This is not ideal as side effects will continue throughout the night. It is hoped that the side effects will not be as severe tonight as day 2 of ATG is usually the worst day - we really hope thats true for Ryan.

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