Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Wednesday, 12 September 2012

Day -6....

...and Ryan's 3rd day of high dose chemo but he continues to feel well. He enjoyed his hours lesson with his teacher Tatiana and has been on x-box and facetime.

Just before bed he was chatting on the phone to his mate Adam who is in America having treatment. Out of the blue Ryan says 'My mum starts injections tomorrow Adam' and Adam replies 'About time she had a taste of her own medicine!' Cheeky! Here he is multi-tasking...

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