Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.
However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.
Saturday, 15 September 2012
He did manage to speak to his cousins on facetime earlier and has been on the x-box but I think that now there will be a change in his condition until the new stem cells have grafted.
On a positive note my blood was tested this morning to see how I am responding to the GCSF injections and I was told that the results were perfect. I have 42 white blood cells and 38 neutrophils - both many many times the normal upper limits and a good indication that the harvest will be successful.