Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Wednesday, 19 September 2012

Day +1

Ryan had no reaction to the stem cells and continues to feel well. Despite the fact his mouth is starting to look sore he says he has no pain. He has been started on TPN (IV nutrition) today which is standard procedure at this point in treatment. He is still managing to eat small portions of food and is up and about. I think I am asking too often if he is ok because he says's ' Mum i'm fine!' and gives me a look to say stop fussing!

1 comment:

  1. Hi Julie

    I'm so pleased everything is going well. I've been following the updates and showing Felix the photos of his 'friend from Bramble'.

    Wishing you lots of love and luck, Jayne and Felix xxx