Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Wednesday, 14 March 2012

1st day of treatment

This morning at 8am Ryan had his first session of radiotherapy. He had a few tears at the time of fitting the mask but not as many as yesterday. It takes about 10 minutes to set up the machine once Ryan is locked in position but the actual treatment only takes about 3-4 minutes. Once it was finished Ryan got dressed and raced us to the lift!

This afternoon we took Ryan into town to get a charger for his x-box controllers, the x-box being his reward for being such a big boy and lying still for radiotherapy. While we were there we were able to take him on a big wheel, it was 60 metres high and he loved it. Here he is at the top...

1 comment:

  1. What a gorgeous boy we will do as much as we possibly can to help, amazingly brave boy, all admiration to your whole family for your strength and courage,wishing u all the love and luck in the world to Ryan and the family xxx

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