Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Saturday, 10 March 2012

After the trauma of last week we wanted to make sure that Ryan had a good weekend before starting radiotherapy treatment next week.  Today he went to his first ever football match to see his mate Jack, who plays for Moors Youth, under 8's.  He loved it and was shouting from the side lines with the rest of the supporters.  He particularly enjoyed having a kick about with boys at half time, playing in a football team is something he has always wanted to do.

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