Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Thursday, 29 March 2012

Ryan has continued to cope well this week, he is off his usual food a bit as the chemo causing changes to his taste buds and things don't taste quite right but he is feeling hungry because of the steroids so it's hard to find him food he likes - he is wanting all the things we don't give him, typically!

On Tuesday we went out for tea with his new friend Beck as it was Beck's birthday which was a real treat for Ryan and the boys had a great time.

Ryan's blood counts haven't dropped as yet and but we are having them checked again today as they are expected too. He has had 2 of 8 injections of GCSF and as it is a high dose it is 0.7ml which looks quite a lot in the syringe and stings a LOT when it goes in so there are unfortunately lots of tears but not for too long.

Yesterday we found a new park and so Ryan was able to enjoy a bit of the lovely weather -here is in on the rather high rope bridge!

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