Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Thursday, 22 March 2012

Ryan has continued to cope well with radiotherapy. We have been to the zoo and a farm park and he has had a good few days. Tomorrow morning after radiotherapy he will be admitted to hospital for 24 hours of chemotherapy. This is being given to prime Ryan's bone marrow in preparation for the bone marrow harvest which is scheduled for the 4th and 5th April. Ryan has asked if his hair will fall out again, we told him we don't know and all he said was 'oh great!'

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