Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Sunday, 18 March 2012

Home for the weekend

There were no tears for radiotherapy on Friday and afterwards we left Bristol and drove home for the weekend. Ryan is feeling well and strangely has lots of energy, if you didn't know him you wouldn't have any clue he was poorly. He has seen some friends and enjoyed playing on his new x-box - which is his reward for laying still during treatment. Tomorrow we drive back to start week two of radiotherapy.


  1. Sincere good wishes to you all from Manhattan Beach, California...

  2. So glad you made it home and sounds like you had a fantastic weekend. Weird when you pack up the house expecting to be gone for weeks, and then managing to return for visits in between. Hope you get a clearer plan tomorrow and so proud of Ryan being so good with his radiotherapy...