Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Monday, 12 March 2012

Yesterday we spent the morning at crealy with some more of Ryan's friends, we stayed outside to reduce the chance of him getting an infection but he had a great time on all the rides, the go-karts and the bridges over the stream. It was hard saying goodbye not knowing when we could see his friends again but we hope and pray it isn't going to be too long.

Today we are packing and go to Bristol later. We are assume for 4 weeks but hope to get home in between treatments if Ryan is well enough. We still don't have a firm plan but we know radiotherapy 'verification' is tomorrow and treatment starts Wednesday. We will keep you updated.

No comments:

Post a Comment