Ryan is an extraordinary boy; he is now 15 years old and in his third complete remission from Stage 4 High Risk Neuroblastoma. In September 2012 Ryan received potentially life saving treatment which was not available to him in the UK. This was made possible by the charity Solving Kids Cancer (formally NCCA UK) together with fundraising support of our friends, family and the general public.
Ryan's story
Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.
However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.
Wednesday, 21 March 2012
Week 2 of radiotherapy
Today we hope to find out when he is being admitted for chemotherapy, it will be Friday, Saturday or Sunday and will mean a 24 hour stay in hospital. Here he is being super brave, the mask covers his head and shoulders and is bolted to the table during radiotherapy.
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