Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Friday, 23 March 2012

Back in the bay

We arrived in hospital at 10am as requested, 5 hours later at 3pm Ryan was started on 3 hours of pre-hydration and chemo will start at 6pm. First chemo not on ward, then his notes weren't on ward, then drugs not written up - so frustrating.

We had originally hoped to spend the afternoon at home tomorrow but that idea is no longer going to happen. We could drive home and back on Sunday but we will wait and see how Ryan is feeling before suggesting it to him.

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