Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Saturday, 24 March 2012

We are back at Sam's House, the house provided by CLIC Sargent. The chemo went on at 6pm until 9pm yesterday and fluids and a drug to protect his bladder from the chemotherapy ran for 24 hours until 6pm tonight. Ryan had a terrible sleep mainly due to the noise and lights in the hospital bay. He slept this morning for a couple hours and had been feeling quite well until 4pm when he started being sick. He has been sick 4-5 times so far and so we are hoping that he will not have a disturbed night tonight. Tomorrow we will just have a quiet day and hope that he wakes up feeling better.

We would really like to say a huge thank you to everyone who has donated to Ryan's appeal, we can't believe it has already reached almost £11,000 although we realise there is a long way to go it is still a very significant amount in a relatively short time. Thank you too to everyone who is giving up their spare time to help raise awareness of Ryan's appeal, we really appreciate it.

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