Ryan's story

Ryan was diagnosed with Stage 4 High Risk Neuroblastoma N-MYC amplified in July 2008. He was out of treatment for just over a year when in November 2010 our lives were again turned upside down when we discovered the disease had returned in his bones and bone marrow. After a year of treatment re-staging scans in November 2011 showed that he had again achieved remission.

However just 3 months later, in February 2012, end of treatment scans gave us the devastating news that the disease has returned, this time with a tumour near his spine. In March Ryan started 4 weeks of radiotherapy followed by chemotherapy which is on-going. Re-staging scans in May and August showed no evidence of disease. On the 4th September 2012 Ryan received treatment in Tubingen for a haplo-identical stem cell transplant. He is a happy, active boy who is now enjoying life to the full.

Tuesday, 27 March 2012

Ryan started to feel better as the day went on on Sunday, we decided against coming home and had a quiet morning but he even felt like a bit of scooting by the river in the afternoon. Yesterday Ryan was pleased to see his Nanny and Grandad and also pleased to see a little boy who was staying at the house for a few days so he can be with his mum and dad on his 6th birthday, which is today. His sister is having a bone marrow transplant and a couple weeks ago he was admitted to hospital to donate his bone marrow to her - what an amazing gift, and a brave boy.

Today Ryan starts GCSF which should encourage his bone marrow to start to recover. This is normally given as an injection and as Ryan got used to having injections in Germany we are hoping that he will tolerate these injections without too much upset, although his reaction to this news was understandably not great. In the past we have requested that this is given IV which means a 2 hour visit to hospital but the injection is something that we could give him at Sam's house and gives him more time out of hospital which we feel is the better option.

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